Day 11 at Home

I got to spend the day at grandma Scarlet’s today. She wasn’t home but she has a fax machine and mom needed to send a bunch of faxes to people.

I am feeling great today. I slept 5 hours straight last night. Mom was holding me the whole time.

I am down to 1/8 liter and holding. Mom tried a room air trial, I dropped down to 60% blood oxygen level and she had to turn my oxygen back on.

Dad has been working 6 days a week to try and pay the bills so that Mom can stay home and take care of me for now.

I hope he knows how much we appreciate him doing that.