Day 21 at Home

It's New Years Eve! Today has been great. My family has been home all day. The kids have left me alone so that I could sleep:)

The weather outside has been kind of bad for a few days now. Mom finally broke down and went out in it, to go grocery shopping today. Dad watched the girls and I, while she was gone.

My Oxygen is at 1/4 liter and I am eating better than I have all week.

Mom dressed me in a silly outfit today and took lots of pictures.

Day 20 at Home

Today started out rough, I was not able to keep anything down and I was supper pale.

I am feeling better now.
The Oxygen guy came to our house today and brought a new bottle of oxygen for me:)

My sisters have been very nice to me today and let me sleep a lot more. The past few days have been rough without sleep.



Day 19 at Home

It has been a busy day here at the Johnson house. We started the day by going to the Credit Union and then Mc Donald's. My sisters got to go to the Jump and Bounce place down the street. I stayed home and played with my sister Bre and my cousin Gabe. My grandma Scarlet came over and visited for a little while.

My Oxygen is up to 1/4 liter. Last night I had a lot of self resolving Bradycardia Episodes where my heart slowed down. Mom is not sure if it was because I was so tired or if I am getting sick.

Hopefully tonight will be better.

Day 18 at Home

It has been a very uneventful day. Mom has spent most of the morning on the phone with people about paying my hospital bill. She did a great job, it looks like out of the million and a half that it cost to have me in there and for me to have my operation, Mom will not have to pay any of it.

Mom has been working on the activities that Sue from Head start suggested. I am getting very good at holding my head up.

Day 17 at Home

Today was fun, I stayed home with the girls. They are very noisy and didn't let me sleep very much today. My mom is hoping that I will sleep better tonight.
I got a bunch of new clothes for Christmas, you will have to watch in the days to come to see me wear all of them.

Grandma Scarlet came and watched me and the girls tonight while Mom and Leita went for gas.

Day 16 at Home

Today is Sunday and my family was home all day.

My sisters love to give me lots of attention.

Because Mom and Dad are home at the same time, I get held a lot more:)

Mom didn't get a very good picture of me yesterday in my Christmas outfit. So she washed it and we had a mini photo shoot to show off the outfit that Aunt Joann gave me.

Day 15 at Home

Today is Christmas and Santa came to our house last night. He brought us toys and clothes!

My sisters have been so busy with their new toys they have hardly had time to bug me:)

I didn't sleep well last night. Maybe it was all the excitement for Christmas......

Day 14 at Home

Today is Christmas Eve! My sisters are so excited for Christmas. I have no idea what to expect.

Grandma came over and babysat  all if us while mom ran to the store for milk and diapers.

Day 13 at Home

Today was a very busy day. Mom took me out to see the Dr (It's my 4 month birthday today) The Dr was nice, but his nurse gave me three big nasty shots.

Audra and Alexis came to my house today to watch my sisters while I was at the Dr's with Mom.

(For those who don't know, Audra is my sister Savannah's first grade teacher)

They also brought Christmas presents:) And they took the girls to Arctic Circle while I was at the Dr's.
I spent most of the day at 1/16 liters of oxygen.

I weigh 7 lbs 6 oz and I am 19.5 inches

Day 12 at Home

Today we are cleaning the house for Christmas.

I am down to 1/8 liter  of oxygen and holding

My sisters have been very loud today.

Day 11 at Home

I got to spend the day at grandma Scarlet’s today. She wasn’t home but she has a fax machine and mom needed to send a bunch of faxes to people.

I am feeling great today. I slept 5 hours straight last night. Mom was holding me the whole time.

I am down to 1/8 liter and holding. Mom tried a room air trial, I dropped down to 60% blood oxygen level and she had to turn my oxygen back on.

Dad has been working 6 days a week to try and pay the bills so that Mom can stay home and take care of me for now.

I hope he knows how much we appreciate him doing that.

Day 10 at Home

I had a wonderful night last night my mom held me most of the night. I love cuddling with her.

We had to run some errands this morning. Luckily everyone is very nice and didn't make us get out of the van. (Thanks Jill)

My sisters have been giving me lots of love. They are off from school for the rest of the year.



Day 9 at Home

I got up early this morning. (1:00 am)

Mom fed me and changed me and fed me and changed me and fed me some more. Then at 5:00 am Dad came to our rescue and he held me for a few hours so that mom could get some sleep.

My sister made breakfast for the first time today. She is quite the cook. Not that they let me eat any pancakes but they all said she did a great job.



Day 8 at Home

Today has been a long day.

My older sisters spent the night at Grandma Johnson's.

I have been fussy most of the day. I like it when mom holds me all the time.

Tonight we had movie night with the family and watched Christmas movies:)

I have been on 1/4 liter oxygen all day.

Day 7 at Home

Today has been crazy busy and wonderful

Stacey came to see me, She is so wonderful.

The Oxygen guy brought new oxygen cylinders so I can breath for the next week:)
Mom did a bunch of errands so Grandma Scarlet spent the day here. (Grandma says she has a new appreciation for mom and all she gets to do every day)

My cousin Lisa came to play this afternoon. She likes to play at out house because we have play dough.

Day 6 at Home

I have had a very good day.

The head start lady "Sue" came and evaluated me. She said I held my head up good.

My oxygen is down to 1/8 liter. 

Nap time:)

Look how much fun I had today.

Up and down and up and down.



Wow! That was quite a workout.